COST Actions

Jan 16 2018

COST Actions : généralités

Les COST Actions sont un outil de mise en réseau, souple, rapide et efficace pour les chercheurs, ingénieurs et universitaires afin de coopérer et de coordonner les activités de recherche financées au niveau national. Les COST Actions permettent aux chercheurs européens de développer conjointement leurs propres idées dans tous les domaines de la science et de la technologie.

Ces programmes sont financés pour le programme-cadre européen Horizon 2020.

Pour en savoir plus sur les COST Action : http://www.cost.eu/COST_Actions

Pour retrouver la liste des COST Actions en cours : http://www.cost.eu/COST_Actions/all_actions/(all)?sortby=default&order=desc

COST Action : BEAT-PCD

Primary ciliary dyskinesia (PCD) is a rare genetic disease affecting approximately 1:10,000. Cilia that line the respiratory tract are dysfunctional and cannot clear mucus properly leading to progressive upper and lower airway disease, including bronchiectasis, hearing impairment and chronic sinusitis. Cilia are common structures throughout the body, so PCD may affect other organs, for example leading to situs inversus, congenital heart defects or infertility. Mutations in 30 different genes have been identified to date, accounting for approximately 60% of PCD. The clinical picture is very heterogeneous, and as for other rare diseases data on the natural course, phenotypic variability, associations with genotype, and effectiveness of treatments of PCD are scarce. Strategies to manage PCD are derived from other diseases, and are controversial. Scientists, clinicians, allied health professionals and patient representatives unite in this Action, providing a platform for communication and exchange. The Action will facilitate PCD-related research to identify mechanisms, study disease patterns and progression, define outcome measures, improve clinical management and identify high priority therapies. This Action is a platform for preclinical studies that will lead to clinical trials.

Action lead by Dr Jane LUCAS (UK).

Start of Action : 11/05/2015 - End of Action : 10/05/2019

Pour retrouver le site de BEAT-PCD, http://www.beatpcd.org/

Pour en savoir plus sur la COST Action BEAT-PCD : http://www.cost.eu/COST_Actions/bmbs/BM1407

COST Action : interstitial lung disease

Interstitial lung disease in children (chILD) is a term that describes a collection of more than 200 rare lung disorders. It is a heterogeneous group of non-neoplastic disorders resulting from damage by varying patterns of inflammation and fibrosis with the interstitium as the primary site of injury. As with other orphan diseases, chILD data is lacking on the natural course, phenotypic variability, associations with genotype, and effectiveness of treatments. The disease course is very variable, and depending on more than just the underlying cause; for example, within a given family, the phenotypic variability of chILD such as surfactant protein C mutation is huge. The rarity of individual chILDs contributes to a lack of randomised control trial data on effectiveness of treatments. Management strategies derive from other diseases or are based on physicians experience and remain controversial.

This Action will create a pan-Europe-led network of multidisciplinary clinicians (adult and paediatric), scientists, and patients and their families with the aim of accurate and early diagnosis with structured, potentially personalised, management and therapies. The Action will stimulate and coordinate multidisciplinary research in chILD from infancy to adulthood, as well as reveal the pathophysiological commonalities between different forms ILD at the molecular level. The results of these efforts will create large incremental changes in understanding and management of chILD. Since chILD is an umbrella term for a number of conditions most of which imply more than purely medical or scientific expertise, the Action will pay due attention to the larger societal implications of chILD research

Action lead by Dr Deborah SNIJDERS (IT).

Start of Action : 06/04/2017 - End of Action : 05/04/2021

Pour en savoir plus sur cette COST Action : http://www.cost.eu/COST_Actions/ca/CA16125

Centres RespiRare Angers Besançon Bordeaux Brest Caen Clermont-Ferrand Créteil Dijon Grenoble Kremlin-Bicêtre Lille Limoges Lyon Marseille Montpellier Nancy Nantes Nice Paris - Trousseau Paris - Necker Paris - Cochin Paris - Robert Debré - Centre constitutif Paris - Robert Debré - Centre de compétences Poitiers Reims Rennes Rouen Saint Denis Saint Pierre Strasbourg Toulouse Tours

PNDS DPI DCP

Déclarations publiques d’intérêts

PNDS Dyskinésies ciliaires primitives de l'enfant

Prénom, NomDéclaration publique d'intérêts
Aline TamaletConsulter
Chiara SileoConsulter
Dominique GirardonConsulter
Hubert Ducou le PointeConsulter
Estelle EscudierConsulter
Guillaume ThouveninConsulter
Harriet CorvolConsulter
Isabelle CizeauConsulter
Isabelle HonoréConsulter
Isabelle PinConsulter
Jean-Christophe DubusConsulter
Jocelyne DerelleConsulter
Justin MichelConsulter
Katia BessaciConsulter
Laurence BassinetConsulter
Marc KoskasConsulter
Marie LegendreConsulter
Marie-Pierre RevelConsulter
Meriem RahmaniConsulter
Muriel LebourgeoisConsulter
Nicole BeydonConsulter
Pierre-Régis BurgelConsulter
Stéphanie WaninConsulter
Véronique HoudouinConsulter

PNDS DPI PID

Déclarations publiques d’intérêts

PNDS Pneumopathies interstitielles diffuses de l’enfant

Prénom, NomDéclaration publique d'intérêts
Rola Abou TaamConsulter
Serge AmselemConsulter
Tiphaine BihouéeConsulter
Céline BinetConsulter
Laureline BertelootConsulter
Déborah BlochConsulter
Michèle BouléConsulter
Aurélie ClavelConsulter
Annick ClementConsulter
Aurore CoulombConsulter
Pierrick CrosConsulter
Jacques de BlicConsulter
Jean-Christophe DubusConsulter
Hubert Ducou le PointeConsulter
Ralph EpaudConsulter
Michaël FayonConsulter
Laurent GouyaConsulter
Alice HadchouelConsulter
Véronique HoudouinConsulter
Marie LegendreConsulter
Nadia NathanConsulter
Meriem RahmaniConsulter
Philipe ReixConsulter
Jean-Luc RittiéConsulter
Chiara SileoConsulter
Aurélie TatopoulosConsulter
Caroline ThumerelleConsulter