Our mission
Apr 10 2019- Details
To welcome patients and improve the quality of their overall care by
- Assisting in the diagnosis
- Working with quality healthcare centers to ensure that each patient is cared for in a structured and coherent manner
- Developing a treatment plan
- Setting up a network accessible throughout France
- Accompanying patients in their transition to adult medicine
To keep patients and caretakers informed by
- Creating informational documents about pathologies
- Developeng the Respirare internet site
- Working with patient associations
- Organizing annual meeting days
To increase awareness and further research by
- Establishing an epidemiological surveillance
- Setting up registers for pathologies
- Developing therapeutic trials
- Stimulating research programs