Our mission

Apr 10 2019

Details

To welcome patients and improve the quality of their overall care by

• Assisting in the diagnosis
• Working with quality healthcare centers to ensure that each patient is cared for in a structured and coherent manner
• Developing a treatment plan
• Setting up a network accessible throughout France
• Accompanying patients in their transition to adult medicine

To keep patients and caretakers informed by

• Creating informational documents about pathologies
• Developeng the Respirare internet site
• Working with patient associations
• Organizing annual meeting days

To increase awareness and further research by

• Establishing an epidemiological surveillance
• Setting up registers for pathologies
• Developing therapeutic trials
• Stimulating research programs